Oh yeah, I do have a blog.
Last night I attended an Exceptional Family Member Program class on Autism. Did you know that 1 in every 66 children of military families has Autism? I didn't know that. I knew that the national average was an astounding 1 in every 150 children are affected by Autism (which includes all autism spectrum cases as well).
When Peter was born with a cleft lip I was told that was the most prevalent birth defect, with 1 in every 750 births.
Autism isn't really a birth defect, but if it were, it would be the new champion.
So as I walk around spewing statistics, let me toss out one more, just to be complete. One in every 5,000 births will result in hereditary spherocytosis.
Yet, with each issue, we're on the mild end of the spectrum.
Very minor cleft lip
Very minor case of Spherocytosis
And minor end of the Autism Spectrum.
I'm grateful we're always just minor, but it's still enough to require herculean efforts to get these things addressed.
I learned a lot last night about Autism! I want some Continuing Educational Credits for all this, it's good stuff for any nurse to know, but I don't think I'm going to get credit for any of this.
Too much to recount for now, but the one subject that's transfixed in my brain at the moment is all the GI issues these kids have. Like I told my
husband last night, I don't think I've met an Autism kid yet who wasn't doing the Gluten/ Dairy free diet. I feel so pressured! Another trend I was amazed to learn of is vitamin B12 shots, of which I still need to learn more about and why they're doing those. Do these kids have pernicious anemia? Are they unable to absorb B12? I'm sure the answer is out there if I looked.
Then there's chelatin therapy. Which I am only really familiar with for iron and heavy metal overload. Specifically, Hereditary Sperocytosis chidren who develop iron over-load from frequent blood transfusions will sometimes require chelating to rid the body of too much iron. (which is why some of these sever cases end up having a splenectomy before they are 5 years old).
I have heard of it before
for the use of Autism. However, as the speaker pointed out last night, chelation can strip the body of the "good and bad" stuff. My main concern would be how it would affect our B vitamins and Folate levels, because that's key for maintaining good blood counts when you have hereditary spherocytosis. So you can be sure I won't be marching after that one too lightly. I can't be too fixated on just one disorder, I've got three issues to consider when designing treatments and procedures for my son.
We're also embarking on the journey with ABA therapy. Right now we're still doing assessment visits, which are kind of nerve wracking for me (since I'm not good at inviting folks into my space).
And, my computer is crapping out...so you might not see much from me often anyhow.
But thanks to my iPhone I can still check on things from time to time while being almost anywhere, anytime, anyplace...that thing is great! I really don't use the phone part of it all that much...but the access to the web is way cool!